Dystonia is a movement disorder characterized by the involuntary, prolonged contraction or twisting of a limb or muscle group. There are many kinds of dystonia, but most dystonia developed secondary to CRPS, is either focal (in a limb) vocal (in the vocal cords), or writer's cramp (in the hand). My current diagnosis is acquired generalized torsion dystonia. This means that my whole body is affected. These sustained contractions can last for days, months, and even years. Dystonia is extremely painful. Unfortunately, my dystonia is refractory to all treatments and medications.
People can also develop dystonia from head injuries, oxygen deprivation, strokes, brain tumors, and a side effect of some medications like Reglan.
When I broke my leg and suffered a severe high ankle sprain at the same time, it actually felt BETTER than the pain I feel from dystonia. Pretty crazy, huh?
Some of the symptoms of dystonia include: -Pain -Spasms/Cramping -Muscle twitching -Jerky movements -Stiff muscles -Inability to move a body part (paralysis due to severe, persistent spasms) -Abnormal posturing of a limb -Fixed contractures
Treatments for dystonia include: Botox injections, physical therapy, aquatic therapy, occupational therapy, speech therapy (if face and/or vocal cords are affected), serial casting, stress reduction, muscle relaxing medications, intrathecal baclofen pumps, and as a last resort, deep brain stimulation (DBS) Some people find relief through massage, acupuncture, tai chi, pilates, meditation