Your pain tolerance is out of this world, and yet that's not enough most of the time.
You choke down a wave of intense pain, that would send most people running to the ER for relief, down with a quiet whimper.
If all else fails to bring pain relief, you know you'll pass out from pain at your breaking point.
Crying is not an option. It simply increases pain.
Everything feels like a horrible tube of Icy/Hot on steroids times 1000000
Everything feels like an eternal visit to the gas station and someone lit a match.
Blankets and even clothes are just unbelievably excruciating.
You are a teen or adult crawling to the bathroom. (Basically anyone other than a toddler)
Having long hair hurts your face and back.
"What's sleep?" You ask. "When did I last have some great quality sleep?" You can't remember.
Shaving, driving, grocery shopping and listening to loud music are different kinds of torture techniques for those with allodynia.
You can't decide if your crutches or wheelchair is helping or hurting you.
You can't decide if you are feeling better or just getting used to the pain.
You are asking yourself, "Is that a new CRPS symptom, or a side effect of my medication?".
You know you have RSD when your legs could be mistaken for a forest because you haven't been able to shave for months because of terrible allodynia.
You know you have RSD when you have 5 colors in the summer. Pale, sunburnt, tanned, "normal", and CRPS which for me includes every color of the rainbow and then some.
At the end of the day, you know what it truly means to fight anything a force that threatens to pull you down.
After all, you are always praying for the pain free days, when you have completely forgotten what pain free feels like.
I am a 20 year old junior at the college of my dreams. I am studying Emergency Medicine and Communication Rhetoric and minoring in the Administration of Justice and National Preparedness and Emergency Management certificate. At some point, I want to go and get my paramedic certification when my health allows. I have several chronic illnesses and this blog and website serves as a place for me to share my journey fighting CRPS and my other conditions. I hope that this blog can also serve as an outlet for raising awareness for rare diseases. Thanks for reading and I hope you enjoy! Feel free to comment; I'd love to know what you think!