I'm wearing my orange today! Are you? For all of November, we are wearing orange for RSD/CRPS Awareness. Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome is a painful, debilitating disorder of the neurological system. It is believed to be caused by damage or malfunction of the central and peripheral nervous systems. Neuropathic pain is only one part of this condition. Other symptoms include swelling, color changes, temperature changes, changes in hair and nail growth and more. In addition, many people with RSD/CRPS develop other chronic conditions as a direct result of the CRPS. All this considered, you can easily see where the term "complex" part comes in. Currently, there are two types of CRPS: Type 1 and Type 2. The major difference between the two types is that in patients with type 1, there is no major injury to nerves and type 2 is characterized by direct injury to a nerve.
There is currently no cure and no FDA approved treatments specifically for the treatment of this condition. In 2014, the FDA declared it an "orphan disease", meaning that because it is so "rare", government grants and funding are not readily available for research. Google Reflex Sympathetic Dystrophy/Complex Regional Pain Syndrome and feel free to ask me any questions via the various social media outlets. Today, and all of NERVEmber, we are working to change that and raise awareness for this dreadful disease!
I am a 20 year old junior at the college of my dreams. I am studying Emergency Medicine and Communication Rhetoric and minoring in the Administration of Justice and National Preparedness and Emergency Management certificate. At some point, I want to go and get my paramedic certification when my health allows. I have several chronic illnesses and this blog and website serves as a place for me to share my journey fighting CRPS and my other conditions. I hope that this blog can also serve as an outlet for raising awareness for rare diseases. Thanks for reading and I hope you enjoy! Feel free to comment; I'd love to know what you think!