Each week, the CRPS Ninja Chronicles will feature an amazing fighter. Meet our first warrior!
My name is Nora and I am 19 years old. I am a sophomore in college studying Environmental Science-Biology Field Studies with a minor in Public Health. In the future, I hope to work with endangered animals from around the world.
What are you diagnoses?
I have Complex Regional Pain Syndrome (CRPS), Fibromyalgia, and joint hypermobility.
What is your favorite motivational/pump up song?
My favorite song is Fight Song by Rachel Platten.
What is your favorite movie?
I have a lot of favorite movies but my top 3 are Frozen, Identity Thief, and Heaven is for real.
What is your favorite book?
My favorite book is either Thirteen Reasons Why or The Book Thief.
What is your favorite inspiring quote?
"Always remember you are braver than you believe, stronger than you seem and smarter than you think."
What do you do for fun?
My favorite past time is horseback riding even though I don't get to do it as much as I would like. I love crafting and making canvases. I also like spending time with my friends and family.
What are 3 interesting facts about you?
1. I have my own blog. crpsdoesnotownme.weebly.com
2. I absolutely love koalas. I also love horses ad dogs.
3. I like to collect postcards from places I have visited.
Would you mind briefly sharing about how you developed these medical problems?
I developed CRPS in March of 2011 but we are not exactly sure how although we have some ideas. At that time it only affected my chest and shoulder but in December of 2014 I had ankle surgery to repair a torn ligament and was immobilized for a few months which caused it to spread to my ankle and foot. Then in April of 2015 I had an emergency appendectomy which cause it to spread to my whole body. I have had joint hyper mobility since I was little and I don't know how my fibromyalgia developed.
What is the toughest part about having chronic illnesses?
The toughest part is simply getting through every day when you're in a lot of pain and being able to do it successfully.
Who are your biggest supporters on those bad day?
My biggest supporter of all time is my mom. She has been there for me my whole life. She has been at every doctor appointment, tests, most physical therapy appointments, and every hospital admission/visit.
What is your biggest accomplishment?
My biggest accomplishment is graduating high school with honors and going to the college of my dreams and being accepted into their honor society.
What is the most positive part of having a chronic condition?
The most positive part of having a chronic illness is you get to meet a lot of people who have the same conditions as you and they are easy to relate to and are able to really understand what you are going through.
Thank you for your time and insight Nora! Keep fighting!
I am a 20 year old junior at the college of my dreams. I am studying Emergency Medicine and Communication Rhetoric and minoring in the Administration of Justice and National Preparedness and Emergency Management certificate. At some point, I want to go and get my paramedic certification when my health allows. I have several chronic illnesses and this blog and website serves as a place for me to share my journey fighting CRPS and my other conditions. I hope that this blog can also serve as an outlet for raising awareness for rare diseases. Thanks for reading and I hope you enjoy! Feel free to comment; I'd love to know what you think!