This is a letter I wrote to my newly diagnosed self last November. I thought I would share it with you today.
November 14, 2014
2 Years Post-CRPS Diagnosis
Dear Meg of November 14, 2012,
Little do you know what lies ahead of you. If you had any idea, you would not be taking the news of your diagnosis so well. Right now, you don’t fully understand the impact that CRPS will have on your life. This is a very good thing. Doctors will tell you that you will “definitely” recover quickly. They will be wrong. Doctors will tell you that it is all in your head. Again, they will be wrong. Doctors will give up and come undone on you. You will constantly be in fear of doctors giving up on you. Your body will start to fail you. It will be hard to walk, pain will soar, and it will wear on you physically, emotionally, and spiritually.
In the months that lie ahead, you will endure a number of procedures, IV sticks, injections, blood tests, infusions, medications, side effects, ER visits, doctor’s appointments, more diagnoses, and many weeks in the hospital. If there were frequent flyer miles for the OR and procedure center, you will amass a ton. You will fight for life when a procedure goes terribly wrong. You will miss more school than you can possibly comprehend. The nurses will become mom equivalents.
But it is not all terrible. You will learn what you still want to do with your life and you will come to the realization that life is way too short to life to live with regrets. You will learn that true strength comes from knowing your limitations, and busting through them. Hold on to hope and remember that all pain has to end someday. Your friends will be beside you every step of the way. They will drop whatever they are doing to visit you or shoot you a text to cheer you up. Many sleepovers will end up being the “Ultimate Children’s Hospital of Pittsburgh Sleepovers”.
You will fight like a champion. Win or lose, champions stay positive and dream big.
Keep your chin up and charge the mountain.
Love, Meg from November 14, 2014
I am a 20 year old junior at the college of my dreams. I am studying Emergency Medicine and Communication Rhetoric and minoring in the Administration of Justice and National Preparedness and Emergency Management certificate. At some point, I want to go and get my paramedic certification when my health allows. I have several chronic illnesses and this blog and website serves as a place for me to share my journey fighting CRPS and my other conditions. I hope that this blog can also serve as an outlet for raising awareness for rare diseases. Thanks for reading and I hope you enjoy! Feel free to comment; I'd love to know what you think!